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Name: Susan Lubiens
Email_Address: susan_lubiens@yahoo.com
Remote User:
Date: February 20, 2006
Time: 02:26:06

Comments:

I read the latest update on you posted at OCCS and was so pleased to read that God has honored our prayers for you--that you are doing better. You are a trooper and my hat is off to you. You continue to be in my thoughts and prayers.

12-year cancer survivor (Thanks to God!)

Name:          Vicky L. Slattery
Email_Address: prtyldy12@yahoo.com
Remote User:  
Date:          January 19, 2006
Time:          15:06:34

Comments:

I am a breast cancer survivor of 1 year and lost all my hair from chemo,  I am making hats this year to donate to others in need of the hats and caps and scarves,  I started before xmas.
 

Name:          Mike Fleming
Email_Address: mfleming73@hotmail.com
Remote User:  
Date:          July 23, 2005
Time:          03:19:55

Comments:

You have a very nice website here, I enjoyed looking at it.
Best of Wishes to you.

Name:          Caroline Kuhn
Email_Address: bermuda_girl1@yahoo.com
Remote User:  
Date:          July 18, 2005
Time:          23:23:24

Comments:

My son Stephen left us on Sept 7 of last year. I do not want one more person to die therefore my husband and I continue to do research and pray constantly. Patrick Stanton from Houston was working thru the Stehlin Clinic in Houston. Please contact them. We have been in touch with the NIH in Washington D.C. and a clinic in the UK. Gleevec did not help us. His tumors doubled in size. The Kushner protocol did not make a difference either. The newest thing I could find came from 2 sources, The NIH and Georgetown University. There my be some help. It is called Rapamycin. It is still not a proven protocol. It does look promising.  Look also at new information on cryosurgery. I have had it and it worked for me.  It was a different situation.  Look into it.  There is a lot of internet information that you can access. Be careful because there are lots of companies that want to sell expensive remedies. Most just want to play on your desire for a cure. There is some research that there is a translocation relating to the chromosomes. It really is hard to say if this is significant or not. Please e-mail if you have any questions. Please contact me if you find any answers. Caroline

 

Name:          Missy Wilson
Email_Address: Missy@movelab.com
Remote User:  
Date:          July 14, 2005
Time:          01:20:21

Comments:

I wanted to inform you of my brother, Derek Wilson's passing. He lost his 7 year battle with DSRCT May 23, 2005. He fought long and hard, and he went gently with all of us there with him in his room. We will miss him greatly.
 

Name:          reiko osumi
Email_Address: rosumi@sbcglobal.net
Remote User:  
Date:          June 09, 2005
Time:          11:55:46

Comments:

Aloha Becky:
   My friend, Susie Seay, has kept me up with what's going on...have been praying for you and keeping you in my thoughts. Currently, living in OKC, OK.  That's a neat "hat" your aunt made...how creative.
   Mucho hugs...............reiko 

Name:          Susie Seay
Email_Address: csewe@comcast.net
Remote User:  
Date:          June 09, 2005
Time:          07:08:14

Comments:

Richard sent me a link to your website and I read some of your recent thoughts. I think you are much more brave than I would be, Becca. I want you to know I am praying for you, for wisdom, health and direction. Every time I see one of those commercials for MDA I think "Someday that will be Becca"... :) Love, Susie

Name:          Jena
Email_Address: jmcgarrahan@wind2.com
Remote User:  
Date:          May 19, 2005
Time:          18:02:21

Comments:

Becca,
I'm praying for you all the time. You and Jeremy are in my heart.
Love Always,
Jena McGarrahan (and Tanner!!)

  • Name:          Beth Orgel
    Email_Address: bkorgel@bex.net
    Remote User:  
    Date:          May 13, 2005
    Time:          11:58:03

    Comments:

    Dear Becky; I feel like I've "known" you for a long time. You know that my thoughts and prayers are with you and Jeremy all the time. Do your best to keep your spirits up. Focus your thoughts and energy on those who love you. There are so many of us. Hugs, Beth and Greg

    • Name:
    Marcia McCluer
    Email_Address:
    marcia@glassblocklock.com
    Remote User:
    Date:
    April 16, 2005
    Time:
    19:08:03

    Comments

    Hi Becky, I was caretaker for MonMon Chen. At age 15 she was diagnosed with DSRCT in mid 2003 while living in China. I do volunteer work in pediatrics @ UCI and got involved with her, when her parents brought her to CA seeking "the cure", and I'm still involved with DSRCT research through Patrick Stanton and UCI. I just read your latest live web page. You sound so scared and and I'm so sorry you are forced to deal with this crap. Of course, I hope you get well after all this tortured effort, but more so I hope you can find some answers so you can live the life you've got --one way or another that's all any of us get to do. I believe, in the scope of how this universe is billions of years old and the best of us maybe gets a hundred, this life is like taking a breath. It's such a small piece of the journey. You need to find a way to grab on to what you have and make the best of it -- again, one way or another that's all any of us gets to do, you just got a warning shot. There has to be more than this life and whether you believe in God or not, that has to be true. How else do we explain still having the presence of people in our lives that have died? My husband died seven years ago this month and I can tell you for sure, he's still around. Don't be afraid of what hasn't happened, but ultimately will for all of us -- it's as natural as being born. Write back if you feel like talking, but mostly, Live Your Life, Make a Difference ... Take care, Love, Marcia

    Name:
    Denise
    Email_Address:
    denisehickie@hotmail.com
    Remote User:
    Date:
    March 21, 2005
    Time:
    04:33:29

    Comments

    Hi Becky just wanted to let you know we have joined the club, my son Dustin has dsrct, and is also on the website. I just started reading your page, and wanted to say God Bless, and if you ever want to talk or chat, that would be wonderful.

    Name:
    wola
    Email_Address:
    jimbo@msn.com
    Remote User:
    Date:
    March 21, 2005
    Time:
    02:55:29

    Comments

    Your site is great - you have done a terrific job. Lots of success.

    Name:
    Greg Daunoras
    Email_Address:
    greg92101@yahoo.com
    Remote User:
    Date:
    March 03, 2005
    Time:
    01:34:08

    Comments

    Hi Cuz:

    from California

    Name:

    Jay and Beth Daunoras
    Email_Address:
    HOOKANDTHECOOK@AOL.COM
    Remote User:
    Date:
    October 21, 2004
    Time:
    15:16:43

    Comments

    HI BECKY, MY NAME IS BETH DAUNORAS, AND MY HUSBAND, JAY HAS DSRCT. HE HAS HAD THIS SINCE 01-02. HE IS DOING WELL AND ON AN ORAL CHEMO TARGRETIN AND THALDMIDE.HE IS CURRENTLY BEING TREATED AT THE U OF PENN. HE HAS HIS NEXT CT 10-27-04. YOUR NAME CAUGHT MY ATTENTION BECAUSE OF YOUR LOCATION. JAY'S BEST FRIEND LIVES IN FORT COLLINGS. THEY OWN BISETTI'S ITALIAN RESTRAUNT. HOW SMALL THE WORLD IS. I HOPE YOUR TREATMENT WITH MD ANDERSON IS GOING WELL. IF YOU HAVE ANY NEW NEWS ABOUT IT PLEASE LET ME KNOW. I WISH YOU WELL. BETH PS LOVE!!!!!!!!!!!!!!THE HATS THEY ARE GREAT!

    Name:
    Sandy
    Email_Address:
    kidoodles3@comcast.net
    Remote User:
    Date:
    September 07, 2004
    Time:
    16:56:47

    Comments

    Best Wishes for a speedy recovery

    Name:

    guyman
    Email_Address:
    mugu@mugu.com
    Remote User:
    Date:
    June 25, 2004
    Time:
    00:58:07

    Comments

    i dey here!!!!!!

    Name:
    kawa
    Email_Address:
    kawa@yahoo.com
    Remote User:
    Date:
    June 22, 2004
    Time:
    13:43:01

    Comments

    i der sun mugu klawa

    Name:
    Donna Liles
    Email_Address:
    HeavenAngel36@hotmail.com
    Remote User:
    Date:
    May 06, 2004
    Time:
    21:16:37

    Comments

    Becky, I was observing your webpage and read your statement on my daughter, Nikole in Texas. You yourself are a Inspiration to us all. It has to be tough for Adults as well as children. I look up to all who battle this disease. I pray that together we will all learn what works and what doesn't and find complete healing with this disease with God's guidance. You are in our prayers. Maybe we all can have a Reunion and get together as one. I am Thankful to Patrick Scranton for bring us together and encouraged ready seven year survival on Richard Spencer and Derek Wilson right behind him. The Lord sent all of you to us just when Nikole and I both needed. God Bless. Donna Liles, Texas

    Name:
    Donna Liles
    Email_Address:
    HeavenAngel36@hotmail.com
    Remote User:
    Date:
    May 06, 2004
    Time:
    21:09:06

    Comments

    Becky, I read your statement on Nikole and began to cry. You are a very inspirational lady yourself. I find it hard for my child and many other who have to fight this dreadful disease, but I find it hard for adults as well. My prayer is we all pull together and find what works and what doesn't and can solve this disease soon. May God continue to bless us and lead us to complete healing. You are in our prayers also. Donna Liles from Texas

    Name:
    Victoria
    Email_Address:
    Patrick@Pipingproducts.com
    Remote User:
    Date:
    February 21, 2004
    Time:
    03:21:12

    Comments

    Dear Becky, I was reading your page and wanted to tell you how brave and strong I think you are. Your drawings are beautiful! Keep drawing! I really believe that you can beat this cancer, you are so much stronger than the cancer is. Do the BEST you can every single day, try different things, I mean alternative medicine and Good Luck with it!!! We are going through the same thing now and I can't think of anything else when Patrick is not doing good, but it makes all of us stronger and we learn from it and it is just life... WE are thinking about you. Best wishes to you from the deep deep of my heart.

    Victoria

    Name:
    Rima
    Email_Address:
    rlivings8@insightbb.com4
    Remote User:
    Date:
    September 18, 2003
    Time:
    15:31:41

    Comments

    Hi

    best wishes for a complete recovery!

    Name:
    Karen
    Email_Address:
    k_hasson@juno.com
    Remote User:
    Date:
    September 08, 2003
    Time:
    12:36:31

    Comments

    Hi Becky: Wanted to say happy belated birthday! I helped Camille out at the camp this summer and had a blast! My husband Wayne is the pastor at Camille's church and we are those new folks from the great white Canadian north! Although we've been to Colorado in the winter too!

    Take care, our Bible study group is praying for you and we are always anxious to get your updates.

    Name:
    Hank and Lorraine Kaminski
    Email_Address:
    hlk@shkaminski.com
    Remote User:
    Date:
    September 05, 2003
    Time:
    11:21:43

    Comments

    Happy Birthday, Becky

    Here it is 8:00 am on the day of your birth. We have been praying for you every time we pray. Uncle Hank mentions you in prayer before every meal and you know he eats at least 3 or 4 times a day. Anyway, that is when I hear him pray and I know there are many more times.

    Enjoy the day, eat a delicious meal as you meet with your loved ones and remember who loves you most. The Lord Jesus Christ. He knows your every need and we are sure He will answer our prayers on your behalf.

    We are praying for all the details to be worked out for your trip to Houston and that you will hear good news.

    Name:
    Mary
    Email_Address:
    amber143@enter.net
    Remote User:
    Date:
    September 05, 2003
    Time:
    02:43:07

    Comments

    HAPPY BIRTHDAY BECKY!!! I'll share a piece of cake with you --- my birthday is Saturday!!

    We're all praying for you here... and I have a friend in Houston who is also praying for you....

    Have a great day ---

    Name:
    Maggie Hollenbach
    Email_Address:
    mbud50netcarrier.com
    Remote User:
    Date:
    August 18, 2003
    Time:
    23:52:26

    Comments

    I'm Camille's Aunt Maggie and I've been praying for you daily since you became ill. I know the Lord is going to heal you or give you enough strength to endore your affliction. I'm a Hospice Volunteer and each case I have had has been so very special to me. I only wish you were closer to me so that I could visit with you personally - the email will have to suffice for the time being. Take care and God Bless.

    Name:
    James Cox
    Email_Address:
    PsalmBassistJim@aol.com
    Remote User:
    Date:
    August 18, 2003
    Time:
    22:52:39

    Comments

    Becky,

    My wife Judy and I have followed your progress for a while now. We continue to pray for you and are encouraged by your continued recovery. We attend Bob and Camille's church in Quakertown, and appreciate both of them and their spirit. May God's healing hand continue to be upon you.

    Jim Cox

    Name:
    Pat Michelin
    Email_Address:
    Patem1@Netzero.net
    Remote User:
    Date:
    August 18, 2003
    Time:
    19:37:42

    Comments

    Hi Becky,

    I've been a friend of your Aunt Camille's for over 25 years (!). I want you to know that you and Jeremy are in my thoughts prayers. I remember when you and Marty were born! I hope you take strength and hope from all those both near and far who care about you. With many, many hugs!!!

    Name:
    Mildred
    Email_Address:
    mmstout@webound.com
    Remote User:
    Date:
    August 18, 2003
    Time:
    12:36:01

    Comments

    This is a wonderful site. I will be praying you all of you. Any illness affects more than just the person who is sick. Those people need prayers too. Just another path we all must walk down to get to our Great Reward in Heaven.

    Name:
    Camille Wieder
    Email_Address:
    symphony@enter.net
    Remote User:
    Date:
    August 16, 2003
    Time:
    18:07:48

    Comments

    Becky, these web pages are for you. May they be an encouragement to you and Jeremy (and the rest of the family) and informative to others about DSRCT.

     

     

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